Your kidneys become infected and stop working properly. Your doctor insists that you’re admitted for emergency treatment, but when you get to the hospital, you discover that because more men than women need kidney treatment right now, they have closed the renal ward to women.
You are put into an ambulance and taken to a hospital in a town you’ve never been to before, about an hour’s drive from where you live. When you get there, your condition is assessed and they admit you for six month’s treatment.
You suddenly feel very scared. You have two small children and your husband works full time. How will they be able to come and visit you? You realise you’re going separated from your close family for months and that your friends, family and colleagues will struggle to come and see you too. You feel very alone and very isolated.
When you demand to be treated closer to home, you’re told no; only male patients can get treatment locally in your area, but that it is perfectly acceptable as there are beds in other hospitals, that it’s only temporary and that some women can be treated at home, so they are all right. The managers say they don’t know when your local ward will be open again, but a member of staff accidentally lets it slip that it’s a 6 month temporary closure. That’s the whole of your treatment.
Six months away from your home, your friends, your family, all your support networks, the places you know and like, the town you live in. Six months with only seeing your children perhaps once or twice a week, but the visits are fraught as they are tired after the journey and there’s nothing for them to do at the hospital. Six months without the chance to go for a coffee during the day with a friend. Six months of hearing your children cry on the phone to you at night as they don’t understand why you can’t come home. Six months and there is NOTHING you can do about it.
This sounds ridiculous doesn’t it? A hospital wouldn’t close its doors to all women as there were more men who needed treatment. No one would send you away for six months of treatment with no chance of being closer to home.
But if you’re a female mental health patient in North Lancashire that is exactly what is going on and exactly what would happen to you if you needed inpatient care right now. It is what would happen to me and to my children if I got seriously ill again.
At first glance Beds in the Orchard looks like a small local issue. After all, what concern should be 6 female inpatient beds in one small psychiatric unit in a one small city be to people elsewhere in the country?
But don’t be fooled by the small, local appearance of Beds in the Orchard. What has happened at The Orchard it is indicative of a much wider problem across the country with the chronic underfunding of Mental Health services impacting on the health and wellbeing of thousands of people and communities. It is indicative of the hard price being paid by women and their families nationally; as they find that their local inpatient psychiatric care has disappeared, leading to them being separated from their support at the time when they need it most.
You need to take an interest because it may be the hospital in your town that stops admitting women next. It may be your mother, your daughter your sister, or even you who finds yourself being sent miles away for care with no chance of being treated closer to home. It could be your friend with severe PND or Puerperal Psychosis separated from her baby or young children for months on end. It could be you if that niggling sense of unease you have turns into a severe depression.
As time and again, the cuts to mental health care and the loss of psychiatric beds are not seen as newsworthy, and campaigns like ours are dismissed as being “too small” or “too local” for people take an interest; the wider picture of the loss of services is consistently missed and hidden. Hidden, of course, right up until you need the service, only to find it’s not there.
What makes it all even more difficult to get public interest is that the women it affects most are the ones who are often too ill, or too scared or too anxious to stand up for themselves, as is made clear in the piece about our campaign in the Huffington Post. There is only strength and interest in numbers, which is why we need people who are strong enough to stand up for those who can’t.
Mental illness can happen to anyone. It happened to me. It could happen to you too. Help us stand up for the women of North Lancashire by signing our petition or by getting involved using the information on elsewhere on this blog. Help us let Lancashire Care NHS Foundation Trust know that this has to change,
Thank you.
Showing posts with label disruption. Show all posts
Showing posts with label disruption. Show all posts
Monday, 17 November 2014
Tuesday, 11 November 2014
S's Story - Moving female patients out of town is at best ludicrous, at worst, dangerous.
As our campaign gains wider attention, we are being contacted by more local service users who were not aware of the changes or the campaign to reverse the decision. One of those service users "S" shares her fears and concerns about this change.
This is more first hand knowledge and experience of how the changes impact on service users and their families.
Dear Beds in the Orchard,
Hope this helps/makes sense as I struggle to write when unwell.
Suggestions that moving female inpatients out of town is not damaging to patients is, at best, ludicrous and at worst dangerous.
I personally know from my struggles with bipolar II, that I can rarely attend meetings with my CPN without the support of my partner and son. They are central to my recovery. If I was shipped out of town there is no way we would have time or means to keep up contact - potentially breaking bonds with my son, that I have fought so hard to rebuild since my PND, PTSD and psychotic episode on the postnatal ward after staff saw fit to (guess what) move me! All against the advice of the MH professionals...
In spite of the rise of stay at home dads and many families successfully co-parenting; my personal experience suggests that in the majority, women run their homes, make decisions regarding children and are better placed to arrange their child's day to day activities - even those women with difficult mental health issues.
For many patients gaining control in a positive way helps their recovery - taking away this option will greatly hinder recovery, increase stress and in turn extend stays in hospital.
This should be about what is best for the patient. If I were to be moved out of town because the help and care I would recieve would be greater then of course I would consider it short term, when I'm at my very worst BUT that isn't happening here and even in the above hypothetical situation I still would need to be moved closer to home as my mental state improved in order to become stable.
For people who struggle with change and need consistency this cruel decision needs looking at again.
This is more first hand knowledge and experience of how the changes impact on service users and their families.
Dear Beds in the Orchard,
Hope this helps/makes sense as I struggle to write when unwell.
Suggestions that moving female inpatients out of town is not damaging to patients is, at best, ludicrous and at worst dangerous.
I personally know from my struggles with bipolar II, that I can rarely attend meetings with my CPN without the support of my partner and son. They are central to my recovery. If I was shipped out of town there is no way we would have time or means to keep up contact - potentially breaking bonds with my son, that I have fought so hard to rebuild since my PND, PTSD and psychotic episode on the postnatal ward after staff saw fit to (guess what) move me! All against the advice of the MH professionals...
In spite of the rise of stay at home dads and many families successfully co-parenting; my personal experience suggests that in the majority, women run their homes, make decisions regarding children and are better placed to arrange their child's day to day activities - even those women with difficult mental health issues.
For many patients gaining control in a positive way helps their recovery - taking away this option will greatly hinder recovery, increase stress and in turn extend stays in hospital.
This should be about what is best for the patient. If I were to be moved out of town because the help and care I would recieve would be greater then of course I would consider it short term, when I'm at my very worst BUT that isn't happening here and even in the above hypothetical situation I still would need to be moved closer to home as my mental state improved in order to become stable.
For people who struggle with change and need consistency this cruel decision needs looking at again.
Monday, 3 November 2014
There's no trusting the Trust
A Source at the Lancashire Care NHS Trust today said that closing The Orchard to women is a 'temporary measure' until the new hospital "The Harbour" is opened in Blackpool.
This is a step away from the previous reasons of protecting the vulnerable, but could cover their reason of it being 'based on need'.
So why do they need more male beds now?
Following further enquires and investigation, we discovered that just weeks before The Orchard was closed to women, they closed Ward 18, a 15 bed male psychiatric ward in Burnley, with no means to cater for the number of beds they knew they needed.
If the Trust closes male beds, they should mitigate that closure by providing treatment in the community to the men they otherwise should have admitted as inpatients. Instead, they withdrew inpatient care to women of a large area of the trust. This is not acceptable.
It's the women of North Lancashire who are paying for this cost saving exercise. It is the women of North Lancashire who are being denied local treatment and its their families who are paying the cost in time, travel and disruption for this decision.
Lancashire Care is failing in its duty of care to the women it is meant to treat and support.
It has to change.
This is a step away from the previous reasons of protecting the vulnerable, but could cover their reason of it being 'based on need'.
So why do they need more male beds now?
Following further enquires and investigation, we discovered that just weeks before The Orchard was closed to women, they closed Ward 18, a 15 bed male psychiatric ward in Burnley, with no means to cater for the number of beds they knew they needed.
If the Trust closes male beds, they should mitigate that closure by providing treatment in the community to the men they otherwise should have admitted as inpatients. Instead, they withdrew inpatient care to women of a large area of the trust. This is not acceptable.
It's the women of North Lancashire who are paying for this cost saving exercise. It is the women of North Lancashire who are being denied local treatment and its their families who are paying the cost in time, travel and disruption for this decision.
Lancashire Care is failing in its duty of care to the women it is meant to treat and support.
It has to change.
Sunday, 2 November 2014
Clare's Story - A near miss, distressed children and a fear for the future.
In April 2014, I was assessed in A&E under the Mental
Health Act. I’d been depressed for a
long time, but the descent was long and slow, until it reached the point where making plans seemed like a perfectly rational thing to
do. Fortunately I had a good friend who
knew it was absolutely not a rational thing to do, so she took me A&E with
me protesting all the time that no one would believe it and it was a waste of
time.
After being assessed by the MH liaison nurse, I was asked if
I would go into hospital, but the only bed available was at The Priory in
Manchester, a private hospital well over an hour’s drive from where I
lived. I refused as I didn’t want to be
so far away from home with no possessions and no means of my husband getting
there, as he had our two small children to look after. In the end they decided not to detain me, but
pass me over to the care of the local Crisis Team.
Like Crisis Teams all over the country, they are massively
overstretched and a decision was taken to leave me in the care of the community
team as I was seeing my psychiatrist the following afternoon. By mid-morning the following day, I was
waiting on the platform of the station for the London express train, however,
the same good friend as the day before had sent her husband speculatively to
see if I was there. That was the near miss.
If a local bed had been available the day before then I would’ve been in
hospital, safe.
Thankfully this time there was a bed in Ridge Lea hospital in Lancaster and I was admitted and stayed there as an inpatient before the
hospital was closed and all of the patients transferred to The Orchard, the new
unit in Lancaster. I was in hospital for
around 3 months.
The impact of my admission on my family was enormous. My son has autism and was extremely disrupted
by my being away as it changed his routines. His autism meant that couldn't express how he felt easily, so he got cross every day. His home to school diary was filled with
examples of him being upset by my absence and struggling in school. My young daughter didn’t remember the last
time I’d been admitted as she’d been too young, but this time she was very
aware and her behaviour became very difficult as she struggled to come to terms
with my being in hospital. She became
clingy to everyone else in the family and anxious that I would never come back.
The only thing that made it better for them was that I was
still close by. My husband bought them
up nearly every day after school and nursery and we got to spend time together,
even though at the time it took monumental effort for me to be ‘normal’ with
them. As I got better and had leave, I
was able to go home to dinner, or do bedtime with them or all the small things
that a parent does for a child.
Sometimes this was more for their benefit than for mine as mental
illness takes away some of the person you are, but to them it meant everything.
If I had been at a hospital miles away, none of that would
have been possible. My children’s
struggles would have been even harder.
The visits would be more sporadic with long journeys to get to see me
and the impact of my absence would have been amplified many times over. At the beginning, my only motivation to get
through the day was the obligation I felt to see them. As I got better, that changed to wanting to
see them as I missed them, till eventually I was discharged.
Even when they are unwell; mothers need to be near their
children and children need to have regular contact with their mothers. Isolating me from my children would have
caused distress on both sides, but now this is what would happen if I was
admitted again.
Getting ill again already scares me as it has had a huge and
lasting impact on my life emotionally and financially and has shaken my whole
world. Now I have the additional fear
that if I get ill, I will be taken away from my family, my friends and everyone
who means anything to me. I will be ill,
alone and isolated from the very people I need to support me to get well.
Closing The Orchard to women like me, may mean more near
misses like mine as they are too scared to take help knowing they will be sent
away. Speaking to other women in the community, I know I am not alone. Fear when you already have a mental illness is not good. Not good at all.
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